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GottaDEAL 2021 Black Friday Prize Club Thread


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#271 jesusluvu  OFFLINE  

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Posted Jan 19, 2021 - 10:16 am

Well fudge...

So, a brief explanation.

My chronic myeloid leukemia was in "remission," due to the high dose of my walking chemotherapy. I put remission in quotation marks, because as a chronic condition it never goes away. But it was at a level where it was no longer detected without doing a bone marrow aspiration (never again, please G-d).

About a year ago, my hematologist told me of a study where CML patients were taken off of their chemotherapy completely. About 50% of the patients remained in "remission," and were able to remain off of the chemo. She and I decided we would like to give this a try, especially as the walking chemo puts me in the immunocompromised group, and effects what type of work I can accept as a classified substitute.

The study was done on patients three years in remission and longer. I was six months away from that point, and eagerly awaited my three year anniversary.

When that point came, my hematologist told me that she had consulted on my case with Dr. Brian Drucker, the inventor of the walking chemotherapy I take. His advice was to wait until I was at least five years in "remission," but he didn't see any harm in reducing my dosage, and seeing how my body responded to that. So, we cut my dose in half.

My hematologist wanted to closely monitor me at first, so instead of having my blood work done in three months, as was my norm, the first test was done after a month. That came back negative, and we decided to go back to testing in three months.

I just got the first three month tests results back. I meet with my hematologist this Thursday, my 61st birthday. I'm pretty sure these results are saying I am not in the fortunate 50%.

*sigh*

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Praying for you....Stay strong and never give up. You have been through so much but yet you are still standing. I know it may not have been the numbers you where looking for but I rather you take it slow and still be here in 2 years to repeat this same post about tell everyone that you are in full remission and no longer have to take anything. 



#272 Gator Pam  OFFLINE  

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Posted Jan 21, 2021 - 9:51 am

Finally received test results from the biopsy done at the end of December, while a different area, results were the same as the other biopsy I had done last August on the bladder: precancerous lesion. So, no treatment on either area for now, but annual follow up required for both.

Follow up with hematologist today, so I'll learn if my walking chemo is going to be increased, or what the next step is.

#273 Gator Pam  OFFLINE  

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Posted Jan 21, 2021 - 2:37 pm

Back from the hematologist.

Huzzah!

The increase is so small, she says to stay the course on the dose of walking chemo I'm on, and follow up in three more months.

#274 packratfamily  OFFLINE  

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Posted Jan 21, 2021 - 2:52 pm

Well fudge...

So, a brief explanation.

My chronic myeloid leukemia was in "remission," due to the high dose of my walking chemotherapy. I put remission in quotation marks, because as a chronic condition it never goes away. But it was at a level where it was no longer detected without doing a bone marrow aspiration (never again, please G-d).

About a year ago, my hematologist told me of a study where CML patients were taken off of their chemotherapy completely. About 50% of the patients remained in "remission," and were able to remain off of the chemo. She and I decided we would like to give this a try, especially as the walking chemo puts me in the immunocompromised group, and effects what type of work I can accept as a classified substitute.

The study was done on patients three years in remission and longer. I was six months away from that point, and eagerly awaited my three year anniversary.

When that point came, my hematologist told me that she had consulted on my case with Dr. Brian Drucker, the inventor of the walking chemotherapy I take. His advice was to wait until I was at least five years in "remission," but he didn't see any harm in reducing my dosage, and seeing how my body responded to that. So, we cut my dose in half.

My hematologist wanted to closely monitor me at first, so instead of having my blood work done in three months, as was my norm, the first test was done after a month. That came back negative, and we decided to go back to testing in three months.

I just got the first three month tests results back. I meet with my hematologist this Thursday, my 61st birthday. I'm pretty sure these results are saying I am not in the fortunate 50%.

*sigh*

Screenshot-2021-01-15-15-31-00.png
Screenshot-2021-01-15-15-31-15.png
Screenshot-2021-01-15-15-31-25.png
Screenshot-2021-01-15-15-31-41.png

Wishing you the best Pam. Chronic diseases are not easy. But I do hope you do well. (I had a good friend with rheumatoid arthritis and she fought like a bear. And still worked helping kids learn reading.)

Hang in there



#275 Gator Pam  OFFLINE  

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Posted Jan 21, 2021 - 7:10 pm

Ooo...

Last year was my bedian birthday. This year it is special for everyone!
140544920-10160718028709578-269124679092

#276 Gator Pam  OFFLINE  

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Posted Jan 21, 2021 - 10:52 pm

I spent the last two days making a new-to-me keto vanilla blackberry cake for my birthday.. Everything was made from scratch, including the sugar free blackberry jam.

It came out decent.

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#277 Reinholt1  OFFLINE  

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Posted Jan 22, 2021 - 5:32 pm

::sigh:: looks yummy Gator!

::staring at bowl of spaghetti-o's::

#278 Reinholt1  OFFLINE  

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Posted Jan 24, 2021 - 6:27 am

Mom received her Christmas card from Jendeere yesterday! LOL! It was post marked Dec. 8th. It took less then 2 months to get to us! Which I guess is pretty good. 100 or so years ago it could take 6 months for a letter or card to reach the recepiant. So, all things considered, we feel lucky.

Thanks Jendeere! Merry Christmas to you!

#279 Brad  OFFLINE  

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Posted Jan 24, 2021 - 9:41 am

With a week to go, these members are in jeopardy of leaving the prize club:

 

bribri25
Doresia
kellis4321
len_mullen
rocky41102
stationchief
Stowasser
tiggerroth



#280 len_mullen  OFFLINE  

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Posted Jan 24, 2021 - 1:33 pm

C-E-S a bust
N-F-L ratings now dust
Goodbye big screen lust


#281 stationchief  OFFLINE  

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Posted Jan 25, 2021 - 9:19 am

Well, rabbit rabbit as they say.

Month went by fast. Still feeling drained and foggy from covid helps time fly, but I'm getting a little better day by day. The not being able to smell or taste much sucks the most. And that's going to last the longest.

Did get some tests done and my chest x-ray shows no more pneumonia and blood work plus nasal swab shows no more covid. So yay there! Just got to isolate some more then I can slowly start getting back to the real world.

"If you put your mind to it, you can accomplish anything." - Dr. Emmett L. Brown


#282 redraccoon  OFFLINE  

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Posted Jan 25, 2021 - 11:54 am

Seeing others post about health things got me off my butt and I finally scheduled a slew of appointments that have referrals for.  Gonna spend the next two weeks getting poked (labs), prodded (colonoscopy) and smashed (mammo) ....not to mention follow up for dental surgery ....  fun times  :woot2:


Gotta Get My Deals!!

#283 Doresia  OFFLINE  

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Posted Jan 25, 2021 - 1:49 pm

Whoa, it's been so busy, I forgot to post!.  Made it before the end of the month though!  Happy New Year!!!!!!!



#284 riven3d  OFFLINE  

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Posted Jan 27, 2021 - 9:01 am

Have to go into to work today for a meeting, it will be the first time since everything shut down back on March 13th that i have been there. Happy to be back to work, but sadly it doesnt look like it will be for that long, Spring Training is only for the month of March, no idea if/when the minor league team will start playing this year.



#285 Kanyon71  OFFLINE  

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Posted Jan 27, 2021 - 12:40 pm

Have to go into to work today for a meeting, it will be the first time since everything shut down back on March 13th that i have been there. Happy to be back to work, but sadly it doesnt look like it will be for that long, Spring Training is only for the month of March, no idea if/when the minor league team will start playing this year.

At least it's some good news. :)



#286 rlbarajas  OFFLINE  

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Posted Jan 28, 2021 - 12:15 pm

Whoa, it's been so busy, I forgot to post!. Made it before the end of the month though! Happy New Year!!!!!!!


I know what you mean. I can’t even remember if i posted already for this month.

#287 bribri25  OFFLINE  

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Posted Jan 30, 2021 - 6:30 pm

You managed to post with a few days to spare; I'm catching the last 28 hours in the month

Edited by bribri25, Jan 30, 2021 - 6:31 pm.


#288 magickallight  OFFLINE  

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Posted Jan 31, 2021 - 10:07 pm

Hope everyone has a safe and healthy February. :)

 

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“The more I know about people, the more I love my dog.” ~ Mark Twain.


#289 BFgrl79  OFFLINE  

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Posted Jan 31, 2021 - 10:08 pm

Happy February to all! Hopefully things will be improving more and more for everyone.

#290 ytmomof4  OFFLINE  

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Posted Feb 1, 2021 - 2:13 am

Happy February!
I hope this is a better month for me

#291 smurfgirl  OFFLINE  

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Posted Feb 1, 2021 - 5:09 am

Happy February! We had our first measurable snow in over two years yesterday!

#292 izzydedyet  OFFLINE  

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Posted Feb 1, 2021 - 5:23 am

Happy February to you all!! Hope it’s a great month for each of you.

#293 stina629  OFFLINE  

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Posted Feb 1, 2021 - 5:24 am

Hey y’all! Posting for February!!

On Friday evening I got a robocall from my principal (I teach high school) that the school division had 90 unrefridgerated COVID vaccines that needed to be given by the end of the night and they were going to be giving them first come, first serve...so I RAN out and my car wouldn’t start!!! So I scraped snow off of my husband’s car and actually made it in time to get one. Yay vaccines!!!! :)

#294 Kanyon71  OFFLINE  

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Posted Feb 1, 2021 - 5:30 am

Crazy that another month has already passed.

#295 Brad  OFFLINE  

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Posted Feb 1, 2021 - 5:38 am

Happy February! We're now down to 50 members.

 

Say goodbye to kellis4321, rocky41102, Stowasser and tiggerroth who did not post during January.



#296 speeddiva  OFFLINE  

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Posted Feb 1, 2021 - 5:50 am

Happy February! We got 5” of snow on Saturday so it finally feels like winter ❄️

#297 bossy1  OFFLINE  

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Posted Feb 1, 2021 - 6:15 am

Here for Feb...Snowy and cold here...but at least no ice.



#298 redeyejay  OFFLINE  

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Posted Feb 1, 2021 - 6:57 am

Happy February!  Spring is on the horizon and I'm ready for it!



#299 giz  OFFLINE  

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Posted Feb 1, 2021 - 9:01 am

February is here. It's been overcast, cold, rainy and windy. Come on sun.

#300 Gator Pam  OFFLINE  

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Posted Feb 1, 2021 - 10:02 am

Rabbit
Rabbit
Rabbit
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